Costly gene therapy could save infant’s life

News

INDIANA (WTHR/NBC News) — An Indiana infant has received a multi-million dollar gene therapy treatment that could save his life.

4-month-old Anthony Schmitz has spent his entire life on a ventilator in intensive care at Riley Hospital for Children.  He suffers from Spinal Muscular Atrophy.

Zolgensma is a prescription gene therapy that costs $2.1 million for the one-time dose.

Indiana Medicaid first rejected the treatment for Schmitz because he was on a ventilator but gave approval on appeal.

“Early diagnosis is key and don’t give up,” saysd Louise Johnson, Schmitz’s mother. “It’s not a death sentence, so just keep fighting. It’s a baby. Keep fighting.”

“I think this was really a group decision that said, ‘Yeah, medically this made sense for this child.’ So, the cost kind of fell by the wayside,” says pediatric neurologist Dr. Larry Walsh.

Read more: http://bit.ly/36YYbuG

Copyright 2020 Nexstar Broadcasting, Inc. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.

Don't Miss

Trending Stories

Report It

Latest News

More Local News