Imagine taking your child to the doctor for what you think may be a cold or the flu, and first being told he had Leukemia, then finding out it wasn’t Leukemia, but something else that could be just as bad.
It took a while for Riley Taylor’s, 11, family to find out exactly what was wrong with him.
Kari Taylor took her son to the emergency room for a high fever and after being tested, she was told her son had Leukemia.
“The doctor came to me and asked me to come into the other room and told me, we think your son has Leukemia,” Kari Taylor said
Kari did not believe it and soon found out her mother’s instinct was right.
“They did say there was something else that it could be but they would have to do a bone marrow biopsy to see and it was Aplastic Anemia,” Taylor said.
And it was at that moment they knew their life would change forever.
“We were even more baffled, okay what is this that you’re telling us that he has and it’s not any better than Leukemia,” Taylor said.
Aplastic Anemia is the result of damage to the bone marrow, which is where new blood cells for your body are made. When the number of cells declines, you can suffer fatigue, bleeding, irregular heartbeat or even heart failure.
It is rare and usually affects young adults between the ages of 15-25 and people over the age of 60.
“It’s rare, yes, less than twenty-thousand people a year get diagnosed with this,” Taylor said.
Riley says compared to when he was first diagnosed he has been doing a lot better.
“Now I just feel a lot better than before, before I didn’t feel like moving around or anything,” Riley Taylor said.
That’s because of all the medications this little boy has to take daily.
“There was no cure for it but there were treatment options, immunosuppressive therapy, through drugs which is the route that we have taken so far, he takes 20 pills a day for it,” Taylor said.
Which so far is giving this little boy a life as close to normal as possible.
There is a Facebook page (Riley’s journey with Aplastic Anemia) and a GoFund Me to help with Riley’s journey and you can find that link, here.